It's confession time. I may not be quite as well as I've been telling you (and myself) lately. With my effort at eating properly and exercising almost daily, I don't seem to have the energy to do much else. I'm not writing much, and I'm sleeping 12 to 14 hours a night.
What I have been feeling is less pain. And less pain is good, extremely good.
So while I can I'm going to make the most of the low pain days.
I'm going to keep exercising, and I'm going to keep being a careful to try to eat properly.
You see, lupus has taught me a lot. One of those things is that a good day is a rare and precious thing. It should never be taken for granted.
So while the good days last, even if I end up going to bed at 5pm, I'm going to continue trying to get my health into the best possible state before my next flare.
I recently asked on Facebook what lessons other lupies had learned from lupus, a lot are things I have also learned. I'm going to share those over the next few days. Lupus has taught us all a great deal - mostly things none of us ever wanted to know.
You know, I've been turned down by nutritionists because of lupus. People do not want to touch me because of how erratic this disease can be. My eating can be all over the place because sometimes my stomach just doesn't work well and sitting and eating for long periods of time isn't helpful for my weight. I have difficulty with fatigue and working out, when I can, makes me that much more tired so I have to account for that when trying to get through my days.
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