Lupies Will Understand

I'm sure lupies will understand these things, healthy people might not.

• Having to do something important, that involves speaking, when you have a massive ulcer on the tip of your tongue.
• Going on a short trip, and having to take an extra bag for your medication.
• When you have a choice between going out and having fun, and having a nap, choosing the nap.
• Writing absolutely everything down, because otherwise you will forget 90% of it.
• Checking your pill case five times in an hour because you keep forgetting if you took your pills.
• Drinking coffee by the litre because otherwise you'll fall asleep, then not being able to sleep when you need to.
• Postponing dealing with a crisis because you have a doctor's appointment.
• Getting exhausted doing nothing
• Not knowing if something new is a symptom or a side-effect.
• Doing things you know you shouldn't because you're just so sick and tired of being sick and tired.